What’s that disease you have?

SINCE YOU ASKED….MYASTHENIA GRAVIS It feels like concrete is being poured into my body. The more I try to do, the weaker I am. Sometimes I resemble a rag doll – limp, unable to move. You see me when I am at my best, but even when I am out, I usually say I...
FEELING BEAUTIFUL

FEELING BEAUTIFUL

How do I feel beautiful when I look so bad? When people know you are ill they expect you to look sick. But what does sick look like? My disease causes weakness and you can’t see that. Chemotherapy causes hair loss and gravely ill people may be cachectic and...