Myasthenia gravis is an invisible illness
This rare neuromuscular disease causing profound weakness is often misunderstood because weakness is invisible. I may look ok, but what you see is not what I get. Myasthenia gravis is an invisible illness.
Weakness is invisible
You never know what will happen when you spend the night in a hotel room with a stranger. I needed a room for the first night of the conference and Jamie had an extra bed at the hotel. Turns out we were well-suited to be roomies and we both got a laugh over the fact that I didn’t realize she is in a wheelchair even though I knew her online.
She is highlighting various disabilities on her blog, Sunflowers and Thorns, and allowed me to contribute an article about what I wish people knew about myasthenia gravis (MG).
I could have written a book. Actually, I did, but that’s another story.
What I wish people knew about #myastheniagravis Click To TweetInvisible illnesses are hard for people to understand
I consulted my MG brothers and sisters around the world and posed the question, “What is one thing you wish people knew about myasthenia gravis?” I tried to include every issue raised, hence enough material for a different book.
2 Corinthians 1:6, “If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer.” NIV
Head on over to Jamie’s blog to read more.
READ MY POST ON MYASTHENIA GRAVIS
Click HERE to read my guest post.
Thanks for the support from fellow MGers #Myastheniagravis Click To TweetI WOULD LOVE TO CONNECT
If you are visiting my blog, it’s nice to meet you. There are lots of ways to stay plugged in. You can receive blog posts in your inbox or you can hear Bible stories in a fun video series called, “Intermission Summit.” I hope you’ll decide to stick around. All I need is your email address.
Come hang out on my Facebook page too, especially if you or someone you know has myasthenia gravis or a chronic illness.
I help people find blessings in adversity and want the opportunity to encourage you.
And speaking of Jamie, I interviewed her on My Journey of Faith radio broadcast. You can listen HERE.
2 Corinthians 4:17, “For our momentary light affliction is producing for us an absolutely incomparable eternal weight of glory.” HCSB
Sharing spreads awareness. June is myasthenia gravis awareness month.
Thanks.
Thanks for sticking with your blog. Making people more aware of the struggles we have and how it can impact our faith.
How quick we are to judge others by what we see. You have reminded us to have a heart of compassion. I think this applies to many hurting people , we see negative behavior but not the causes…pain and brokenness. Open the eyes of my heart LORD.
Very true. It is so easy to quickly judge. I feel that severe mental illness falls into the same category. It isn’t ok to talk about. There is judgement. When I see the homeless, I think,” but for the grace of God, that could be someone I love “. I pray for healing. If not , then His grace to handle all that ill health brings into our lives
You are right. And often once you get to know people you see them in a totally different light
Sometimes its frustrating to hear someone say things like, Oh, yay, you are better, you don’t have to use your cane or walker anymore, when I just left them in the car, to open the door to hug their neck, or those who come up to you while you are walking with your walker in the store and say, “what is that for? I thought you were a physical therapist” I explain, I AM an physical therapist, not was, I have a neuromuscular disease, but I am still a PT.
So glad to connect with you. It makes this crazy disease easier when we talk to someone who gets it